2007.03.19 Mon
色素性乾皮症（XP）
YUI公式サイトのSTAFF DIARYにて、とってもうれしいニュースがうｐされてました。
『タイヨウのうた』と色素性乾皮症（XP）
皆さん、こんばんは！
雨のたびに春が近づいてくるのを実感する今日この頃、
いかがお過ごしですか？
さて、今回は「タイヨウのうた」に関する
心温まる、本当に嬉しいレポートです。
すでに報道等でご存知の方もいらっしゃるかと思いますが、
昨日（3/12）、厚生労働省の特定疾患対策懇談会が開かれ、
難治性疾患克服研究事業の指定疾病（従来、121疾患）に、
新たにXPと進行性骨化性線維異形成症（FOP）が追加されることが
決まりました（いわゆる難病指定）。
2003年以来の新規疾患追加だそうです。
YUIが生きた雨音薫と同じ病気をかかえながら、
日々を生きている方々の背中を、
「タイヨウのうた」を通じての署名活動が、
強く照らした結果になりました。
あの映画の感激が、世の中を少し、変えたのです。
本当に素晴らしいニュースです。
これで病気を抱える方の苦しみがなくなるわけでは
全くありませんが、きっと、ひとつの喜びとして届くはず。
今日は、珍しく、まじめなニュースでした！
でわでわ〜〜
※STAFF DIARY引用
コレみたとき、バイトの休憩中だったんですけど、
病気を抱える人へのひとつの喜びが生まれたことと、
YUIさんの思いが伝わったんだということで非常に感激してしまい、号泣してしまいました。
この映画のすばらしさをもっとみんなに伝えられたらなと思います。
『タイヨウのうた』と色素性乾皮症（XP）
皆さん、こんばんは！
雨のたびに春が近づいてくるのを実感する今日この頃、
いかがお過ごしですか？
さて、今回は「タイヨウのうた」に関する
心温まる、本当に嬉しいレポートです。
すでに報道等でご存知の方もいらっしゃるかと思いますが、
昨日（3/12）、厚生労働省の特定疾患対策懇談会が開かれ、
難治性疾患克服研究事業の指定疾病（従来、121疾患）に、
新たにXPと進行性骨化性線維異形成症（FOP）が追加されることが
決まりました（いわゆる難病指定）。
2003年以来の新規疾患追加だそうです。
YUIが生きた雨音薫と同じ病気をかかえながら、
日々を生きている方々の背中を、
「タイヨウのうた」を通じての署名活動が、
強く照らした結果になりました。
あの映画の感激が、世の中を少し、変えたのです。
本当に素晴らしいニュースです。
これで病気を抱える方の苦しみがなくなるわけでは
全くありませんが、きっと、ひとつの喜びとして届くはず。
今日は、珍しく、まじめなニュースでした！
でわでわ〜〜
※STAFF DIARY引用
コレみたとき、バイトの休憩中だったんですけど、
病気を抱える人へのひとつの喜びが生まれたことと、
YUIさんの思いが伝わったんだということで非常に感激してしまい、号泣してしまいました。
この映画のすばらしさをもっとみんなに伝えられたらなと思います。
| YUI | 00:06 | comments:64 | trackbacks:1 | TOP↑
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色素について
色素色素（しきそ、coloring matter）とは可視光の吸収あるいは放出により物体に色を与える物質の総称である。色素となる物質は無機化合物と有機化合物の双方に存在し、染料や顔料に於いては発色成分としてして含むものも多い。逆にすべての発色が色素によるものというわけ�
| 化学物質いろいろ | 2007/03/19 09:47 |
